SPED

​I am so frustrated right now. Yesterday was soaring to high school event at my youngest jr high. It’s to help prepare and figure put classes to take next year. Well only if your child is not in the sped program. No information was given for sped kids. All these cool classes were talking about? Not for sped kids. Class schedule? Will be figured out by the school. When will we get information about what his schooling will look at? Maybe sometime in April. Why can’t they have a pamphlet something that gives us parents an idea of what high schools will look like? My special needs should going to High School is giving my anxiety and giving me no information at all what it will look like while the rest of the students get information is so beyond frustrating. Especially when it was said that all eight graders needed to go to this. Just you know not my child because he isn’t normal. So inclusive of them.

Money grubbing apps.

​ Wow blogger

 Vey thing has really become a money grab.Should not be surprised that like everything else blogger now charges to do some basic things on a blog. Well due to medical bills and the expense of one of my child’s meds there is no way I am paying any money to them. So no more pictures on this blog and it seems beyond crazy to me that they limit how many edits you can do on your blog? Like what? Oh well if I have any typos they’ll just stay because so many sites are trying to bleed us dry with fees.

Hi

​So it’s been what ten years since my last post? I’m not sure what I’m going to accomplish with posting again just I’m tired and want to release some of my stresses on here. 

Where do I start. We found out why my youngest was going through all he was going through. He has a rare genetic disorder called puff-60 syndrome. Less than a hundred in the world have been diagnosed with this. As far as I know he’s the only one in our state. Neither myself nor my husband is a carrier so it was a random mutation.

It’s a bitter sweet answer yay we know what he was! Boo it’s so beyond rare that we have very little to no answers. There is no cure nor medicine to help him with the enzymes his body does not make. Unless many more people are diagnosed with this genetic disorder little to nothing will be done. It’s not profitable to pharmaceutical companies and if they did make something for it we would never be able to afford it.

Insomnia

So sorry for my lack of post my insomnia is kicking my ass and I haven't been in the right state of mind to write. Honestly not really am now just figured I'd give a short update. Hubby is still not all that great they are trying to find the correct dosages to work correctly. I finished season 3 of Orphan Black haven't watched season 4 it's not free on prime and so decided to find something else to watch which I never have. Watch the first season/ episode of Sherlock and will be watching the other two. Definitely enjoyed it more then I expected. Not much else going on boys had dentist appointment today and they both did well.

First pic was from six months ago second today boys sure are growing!

Darkness Fair by Rachel A Marks, book review

 

Against the backdrop of an ancient battle between the forces of Light and the forces of Darkness, Aidan struggles to control the newly awakened and enigmatic powers that seem to be his only hope for rescuing Ava, his little sister, trapped somewhere beyond the Veil. As he gravitates to Kara, the beguiling and dangerously unstable girl who helped him realize his abilities, a terrible mistake of fate is revealed that points him back toward Rebecca, whose role is becoming more critical to the battle. And no matter what his heart wants, it might be too late to stop the pieces already in motion.

Without knowing the sacrifices that will be required of them, Aidan and his motley crew of friends—each with their own role to play—must face the demon threat head-on. They’re the only ones keeping the growing army of Darkness at bay, and if they fail, the future of humanity could be lost.

Honestly I do not know why I like this series but I do. Some of the characters are s bit cliche and when I look back at it not a ton happened this one and yet it kept me entertained. And unlike most books I've read as of late there wasn't any blaring parts that bugged me. Overall I liked this book the backdrop to it is more unique them some and one part even made me emotional.

The only negative thing I can say about it wax there were a few grammatical errors that should have been caught before it was released and even those were not as bad as book one. Saw only a few small errors there were more in book one. I will definitely be reading the last book in this series I gotta know what happens and especially what the hell is going on with one character in particular. Won't go into detail because I do recommend this book and the twists in this one are not fully predictable.

Halloween summer festival

Took the boys to the Halloween summer festival in Magna. 

Overall it was fun mainly went for the boys they love anything and everything Halloween. So we went. It mainly had booths that people were selling stuff out a grabbed a few cards from some of the local artists so that I can follow them on etsy.

The one on type has the cool looking jars with different items in. One I really liked I love seashells and it well contained seashells and was thirty dollars and as mentioned I don't have extra cash right now but looking is fun. 

^ screen cap of her etsy shop.

The bottom one  hillzart had some very unique drawings and some pretty jewelry made out of wood.  I've included a secret cap f some of her jewelry From her etsy site, so pretty and unique.

Went with my parents to the festival since hubby is adjusting to his new meds but not that well. Betting he will be calling cardiology once again tomorrow.

Also while we were out some people were dressed in some strange angle costumes guess they were unhappy with the Halloween festival? Not so great picture below its behind d the car :/.

Lastly two more photos from the festival top Star Wars motorcycle from Salt Lake Comic Con. And last speaks for itself just a random photo really🎃. 

Progress

Hubby was seen by cardiology once again today because he is tired of the aweful side effects of his medicine ch and needs something to be done. This time they listened! They have decreased his beta blocker by half and for the next two weeks no cholesterol meds. Hopefully he will feel more like himself. He's hoping he feels better by Saturday because I have plans to take the boys to a festival with my parents and he wants to feel well enough to go will just have to wait and see.

Side note I am so frustrated with my yard right now. Trying to keep it in ok shape. Can't add anything to broke for thy but at least trying to keep the weeds at bay but these keeps happening:

Think we have a vole problem. Darn little guys keep causing dirt piles all over my grass the damn things are destroying my yard. Don't know what we can do to get rid off them either. Can't afford an exterminator and doubt it would work hey are not just in my yard. Kill them

And they'll just come back :/. All I can say is they suck.